I’m nearly 11 so I still have to go to school! My favourite subject is English but I hate Maths. When I leave school I’d like to work in the music business as a Manager, just like Scott “Scooter” Braun who discovered Justin Bieber! My idols are Justin Bieber, Scooter and Usher. When I’m not listening to music, I love skiing, shopping and skyping my friends – the 3 S’s!!!
I was diagnosed with chronic uveitis in both eyes in 2009 when I was 9 years old. I hadn’t been feeling strange, and my eyes weren’t hurting at all. I suppose that’s why we hadn’t found out about it sooner.
Mum took me to the optician for an eye test for the first time. I couldn’t see the big E on the chart with my right eye. He said something was wrong and that I needed glasses. I’d known for years that I couldn’t see properly but I guess I’d just got used to it.
(I’ve broken so many pairs of glasses since then I’ve lost track! But don’t tell anyone it’s a secret!)
I’ve been to see soooo many doctors, some I’ve liked and some I’ve hated. Then I started seeing Professor William Ayliffe (Will for short!) The place I see Will is really nice. Will started me off on weekly Methotrexate and 10 tablets of Ciclosporin a day, which was horrible as they stunk! But I became a professional pill taker in no time – soaking them in grape juice helped a bit!
My treatment at the moment is dilating drops at night time which I don’t like because my vision is still all blurry the next day at school; steroid drops sometimes depending on how good or bad my eyes are. I also take Tacrolimus, 6 tablets a day and Methotrexate injections twice a week on the weekends (I really hate injections.)
I have never liked having Uveitis. It can be frustrating because I never know if my eyes are flaring (and they do -ALOT!) until my sight starts worsening. It’s also annoying when my Mum sits and talks to Will like forever at my monthly appointments!
I really hope that with all of your help, one day we can find a cure.